H is for
What in the world is that?
I asked the same question.
It’s easier to get medical speak by looking it up
Essentially it is a thickening of the heart muscle
doctors think it’s genetic
in my son’s case they can not find the gene so maybe he is just one of those people who have it
the docs think that it is present at birth
it’s not very common compared to other heart conditions but there are centers around the world that are usually attached to large hospitals where doctors are specially trained in this disease and they are running clinical trials and studies.
sometimes it also presents with a stenosis which grows out into the heart chamber, close to valve, thus a need for valve replacement (in the case with our son)
some people live their entire lives without a symptom
others die suddenly playing football or soccer at a young age
many times there are no symptoms – other times symptoms present and then sudden death
parents are left devastated — kids die
We found out by our son having unusually high blood pressure for apparently no reason except for maybe diet.
Diet was changed, weight was lost, echo was done, many more tests, waiting waiting
leaves the kid if they are older, reeling…
parents: what to do? Helpless…
H is for H C M
How I hate it